Publications

Brenner, M., Lombard, J., Quirke, M., Cassidy, L., & Alexander, D. (2025). Navigating healthcare decision-making for children requiring life-sustaining medical treatment in Ireland: exploring clinician perspectives through the lens of the Irish legal system. BMC Medical Ethics, 26(1), 72. https://doi.org/10.1186/s12910-025-01237-x 

Desroches, M. L. (2025). Nurses should prioritise constipation prevention for people with severe/profound intellectual and developmental disabilities and multiple long-term conditions. Evidence-Based Nursing, 28(2), 69–69. https://doi.org/10.1136/ebnurs-2024-104187 

Dickens, R., Leroy, P., Eppich, W., & Brenner, M. (2025). Trustful relationships between healthcare professionals and children: a concept analysis using Rodgers’ evolutionary approach. European Journal of Pediatrics, 184(7), 464. https://doi.org/10.1007/s00431-025-06297-0 

Falcon, A., Porter, A., Matsuda, Y., Foronda, C. L., Lovan, P., & Graefe, B. (2025). Unlocking public health competencies: the dose–response effect of problem-based learning on undergraduate student outcomes. Frontiers in Public Health, 13. https://doi.org/10.3389/fpubh.2025.1560098 

McCabe, C., Connolly, L., Quintana, Y., Weir, A., Moen, A., Ingvar, M., McCann, M., Doyle, C., Hughes, M., & Brenner, M. (2025). How to Refine and Prioritize Key Performance Indicators for Digital Health Interventions: Tutorial on Using Consensus Methodology to Enable Meaningful Evaluation of Novel Digital Health Interventions. Journal of Medical Internet Research, 27(1), e68757. https://doi.org/10.2196/68757 

McMahon, M., Cooney-Miner, D., Bourne, M., & Brown, H. (2025). Pilot educational intervention for the care of adolescents with autism spectrum disorder during puberty. Journal of the American Association of Nurse Practitioners. https://doi.org/10.1097/JXX.0000000000001033 

Moore, K., Reidy, M., Gooney, M., & Foran, S. (2025). Menopause and Intellectual Disabilities. In G. Bennett & E. Goodall (Eds.), The Palgrave Encyclopedia of Disability (pp. 1–16). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-40858-8_323-1

Murphy, M., Fulham-McQuillan, H., Higgins, A., & Brenner, M. (2025). An evaluation of the impact of a cancer support specialist service on families of children with cancer and the multidisciplinary team in a children’s health service in Ireland. Journal of Child Health Care, 13674935241312722. https://doi.org/10.1177/13674935241312722 

Patrone, V., Napolitano, D., Faith, M., & Shanahan, M. (2025). Curriculum-based Evaluation of Cultural Competency Coursework in an Online Applied Behavior Analysis Graduate Program. Behavior Analysis in Practice. https://doi.org/10.1007/s40617-025-01067-8  

Reidy, M., & Callaghan, L. (2025). Exploring the Sense of Virtual Community Among Members of the Registered Nurse in Intellectual Disability (RNID) Excellence Ireland Network Facebook Group. British Journal of Learning Disabilities, 53(2), 324–332. https://doi.org/10.1111/bld.12639   

Ryder, M., Browne, F., Curtin, M., Connolly, M., Furlong, E., Geraghty, S., Larkin, J., Prendergast, M., Meegan, M., & Brenner, M. (2025). A National Evaluation of Undergraduate Nursing and Midwifery Curricula. Journal of Advanced Nursing, 81(4), 2072–2086. https://doi.org/10.1111/jan.16430   

Wade, R., Smith-Brown, C., Lieberman, L., Reidy, M. C., Cronholm, P. F., Fein, J. A., Pachter, L. M., & Forke, C. M. (2025). Expanding the Concept of Adverse Childhood Experiences: A Decade of Insights. American Journal of Preventive Medicine, 69(2). https://doi.org/10.1016/j.amepre.2025.107660  

West, P., Robbins, L., Douglas, S. N., Given, C., DeCicco, B., Pathak, D., & Wyatt, G. (2025). Family functioning among adolescents with developmental disabilities utilizing augmentative and alternative communication. Disability and Rehabilitation: Assistive Technology, 0(0), 1–14. https://doi.org/10.1080/17483107.2025.2516623

Alexander, D., Quirke, M., Greene, J., Cassidy, L., Hilliard, C., & Brenner, M. (2024). The role of bioethics services in paediatric intensive care units: a qualitative descriptive study. BMC Medical Ethics, 25(1), 20. https://doi.org/10.1186/s12910-024-01017-z   

Bani-Issa, W., Abu Talib, M., Timmins, F., Brenner, M., & Alameddine, M. (2024). Developments in empowering and supporting women’s role in scientific research in the United Arab Emirates. Journal of Advanced Nursing, 80(1), 4–7. https://doi.org/10.1111/jan.15731   

Bourne, M. (2024). Which Is Which? Differentiating Between Research, EBP, QI, and PI. Orthopaedic Nursing, 43(6), 358. https://doi.org/10.1097/NOR.0000000000001078   

Brown, H., & DeSocio, J. (2024). An invitation to examine ableism in psychiatric nursing practice. Archives of Psychiatric Nursing, 52, A1–A2. https://doi.org/10.1016/j.apnu.2024.08.002  

Cervi, R., Gruber, D. J., & Napolitano, D. A. (2024). Implementing skill-based treatment within a classroom setting for an adolescent with autism. Behavioral Interventions, 39(2), e1989. https://doi.org/10.1002/bin.1989   

Coyne, I., Pembroke, S., Sleath, B., Brenner, M., Roche, E. F., Hilliard, C., & Cody, D. (2024). Adolescents, parents, and providers’ experiences of triadic encounters in paediatric diabetes clinics: A qualitative study. Health Expectations, 27(1), e13916. https://doi.org/10.1111/hex.13916   

Desroches, M. L., Stych, J., Bannett, G., Guttentag, R., Ailey, S. H., & Fisher, K. (2024). Establishing Best Practices in Telehealth Care for Adults with Developmental Disabilities in the United States: An e-Delphi Study. Telemedicine and E-Health, 30(8), e2373–e2382. https://doi.org/10.1089/tmj.2023.0547  

Desroches, M. L. (2024). Supportive environment is key to self-determination for people with severe or profound intellectual disabilities. Evidence-Based Nursing, 27(2), 75–75. https://doi.org/10.1136/ebnurs-2023-103790   

Desroches, M. L., Fisher, K., & Daudelin, D. (2024). “A little bit more challenging, but more rewarding”: Medical-surgical nurses’ perspectives on caring for adults with intellectual disabilities. Journal of Intellectual Disabilities, 17446295241304135. https://doi.org/10.1177/17446295241304135   

Evanko, C.D., Moss-Lourenco, T., Kramer, R., & Napolitano, D A. (2024). “Why We All Need to Shape the Profession of Behavior Analysis through Advocacy and How to Get Started.” Behavior Analysis in Practice. https://doi.org/10.1007/s40617-023-00895-w   

Felton, A., & Cheshire, K. (2024). Using Simulation-Based Training to Improve Neonatal Resuscitation Clinical Competency, Confidence, and Comfort Level of NICU Caregivers. The Journal of Continuing Education in Nursing, 55(4), 175–180. https://doi.org/10.3928/00220124-20231130-21   

Fernandez-Pineda, M., Melendez, C. R., Fernandez, M., Cianelli, R., Roman, J., Villegas, N., Matsuda, Y., & Montano, N. P. (2024). Predictors of Human Papillomavirus Vaccine Intention and Uptake Among US Hispanic Parents: A Cross-Sectional Study. Hispanic Health Care International, 22(3), 142–149. https://doi.org/10.1177/15404153241229688   

Fisher, K. M., Desroches, M. L., Northway, R., Marsden, D., Horan, P., & Rees, S. (2024). The Global Intellectual Disability Nursing Research Collaboratory: Forming an international transformational nursing network. International Nursing Review, 71(4), 689–694. https://doi.org/10.1111/inr.13000   

Helton, J. J., Koetting, C., Kronk, R., Kong, V., & Kim, Y. S. (2024). Autism Severity, Adverse Childhood Experiences, and Oral Health: A Comparative Study of Adolescents in the United States. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-024-06488-y   

Iriarte, E., Cianelli, R., De Santis, J. P., Alamian, A., Castro, J. G., Matsuda, Y., & Araya, A.-X. (2024). Multidimensional Frailty, Quality of Life and Self-Management in Aging Hispanics Living With HIV. Journal of Applied Gerontology, 43(7), 899–909. https://doi.org/10.1177/07334648231211743   

Kelly, M. M., & Brace, M. (2024). Influence of Preterm Birth and Environmental Context on Academic Performance and Neurodevelopmental Outcomes. Nursing Research, 73(5), 342. https://doi.org/10.1097/NNR.0000000000000751   

Kelly, M. M., Copel, L., Herbers, J. E., Knight, A. C., McKay, M. A., McKeever, A., & Pariseault, C. (2024). Family experiences reported by healthcare worker parents during the COVID-19 pandemic. Journal of Pediatric Nursing, 77, 53–62. https://doi.org/10.1016/j.pedn.2024.03.015   

Kelly, M. M., Martin-Peters, T., & Farber, J. S. (2024). Secondary Data Analysis: Using existing data to answer new questions. Journal of Pediatric Health Care, 38(4), 615–618. https://doi.org/10.1016/j.pedhc.2024.03.005   

Masterson, K., Connolly, M., Alexander, D., & Brenner, M. (2024). Voice of the nurse in paediatric intensive care: a scoping review. BMJ Open, 14(12), e082175. https://doi.org/10.1136/bmjopen-2023-082175   

Masterson, K., Connolly, M., & Brenner, M. (2024). The complexity of providing nursing care during the initiation of long-term ventilation in a PICU. Australian Critical Care, 37, S8–S9. https://doi.org/10.1016/j.aucc.2024.07.025   

Matsuda, Y., Falcon, A., Porter, A., Royer, A., Mohnkern, L., Vergara, D., & Valiente, Y. (2024). Implementation of problem-based learning modules in an introduction to public health course. Frontiers in Public Health, 12. https://doi.org/10.3389/fpubh.2024.1405227  

Matsuda, Y., Weger, H., & Norris, A. E. (2024). Narrative and Behavioral Engagement as Indicators for the Effectiveness of Intentionally Designed Virtual Simulations of Interpersonal Interactions. International Journal of Human–Computer Interaction, 40(7), 1532–1544. https://doi.org/10.1080/10447318.2022.2144124   

McMahon, M., Cooney-Miner, D., Bourne, M., & Brown, H. (2024). Pilot educational intervention for the care of adolescents with autism spectrum disorder during puberty. Journal of the American Association of Nurse Practitioners. https://doi.org/10.1097/JXX.0000000000001033  

Miner, D.C., Ailey, S.H., Thompson, R.A., Squires, A., Adarlo, A. and Brown, H. (2024), “We have met the enemy and it is us”: Healthcare professionals as the barrier to health equity for people with intellectual and developmental disability. Res Nurs Health, 47: 269-273. https://doi.org/10.1002/nur.22376  

Napolitano, D.A., Cohen, L.A. & Cihon, T.M. Behavior Analysis at a Macro Level: The Case for Behavior Analysts in Public Policy Work. Behav Analysis Practice (2024). https://doi.org/10.1007/s40617-023-00895-w    

Ramirez, J. D., Sarik, D. A., Matsuda, Y., & Ortiz, J. (2024). Best Practices to Support Maternal Mental Health During the Transition from Neonatal Intensive Care Unit to Home: A Scoping Review. Critical Care Nursing Clinics, 36(2), 261–280. https://doi.org/10.1016/j.cnc.2023.11.006   

Ramsey, V. L., Tubog, T. D., Sadighi, T., & Mays, T. (2024). Assessing the Nurse Anesthesiologists’ Self-Perceived Preparedness to the Care for Individuals With Intellectual and Development Disability: A Cross Sectional Survey. AANA Journal, 92(3), 181–187. https://pubmed.ncbi.nlm.nih.gov/38758712/   

Reaves, R. P., De Oliveira, G., & Martinez, A. J. S. (2024). Exploring Psychosocial Distress in Caregivers of Children and Youth With Special Health Care Needs. Journal of Psychosocial Nursing and Mental Health Services, 62(9), 37–46. https://doi.org/10.3928/02793695-20240321-01   

Reaves, R. P., Chiang-Hanisko, L., Liehr, P., & Gattamorta, K. (2024). The Lived Experience of Parents of Children and Youth With Special Healthcare Needs on Public and Private Insurance: A Phenomenological Study. Professional Case Management, 29(6), 243–253. https://doi.org/10.1097/NCM.0000000000000705  

Sarik, D. A., Matsuda, Y., Garber, K., Hernandez, M., & Terrell, E. A. (2024). Perspectives on Telehealth Use with the Neonatal Population: Policy, Practice, and Implementation Considerations. Critical Care Nursing Clinics, 36(1), 135–146. https://doi.org/10.1016/j.cnc.2023.09.003   

Quirke, M. B., Alexander, D., Cassidy, L., Walsh, C., Masterson, K., Hill, K., & Brenner, M. (2024). Adolescents with Rett syndrome at critical care pathway junctures: Examining clinicians’ decision to initiate invasive long-term ventilation. European Journal of Paediatric Neurology, 49, 113–119. https://doi.org/10.1016/j.ejpn.2024.02.015   

Weissinger, G. M., Brom, H., Macneal, L., & Petoskey, C. (2024). Psychiatric Mental Health Nurse Practitioner Job and Patient Outcomes: A Scoping Review. Journal for Nurse Practitioners, 20(6), Article 105019. https://doi.org/10.1016/j.nurpra.2024.105019   

Westphaln, K. K., Clark, L., Watts, C., Blackwell, J., Smith, C. J., Osuna-Garcia, A., Williams, A., & Mudrick, N. R. (2024). Parents with disabilities, mandated reporting, and nursing: A scoping review. Nursing Outlook, 72(6), Article 102305. https://doi.org/10.1016/j.outlook.2024.102305   

Alexander, D., Quirke, M., Doyle, C., Hill, K., Masterson, K., & Brenner, M. (2023). Technology solutionism in paediatric intensive care: clinicians’ perspectives of bioethical considerations. BMC Medical Ethics, 24(1), 55. https://doi.org/10.1186/s12910-023-00937-6   

Bourne, M. J., Smeltzer, S. C., Kelly, M. M., & Mariani, B. (2023, March 1). ADAPTATION AND TESTING OF THE DEVELOPMENTAL DISABILITY ATTITUDES IN NURSING CARE INSTRUMENT. J Nurs Meas. https://doi.org/10.1891/JNM-2021-0015   

Bray, L., Carter, B., Kiernan, J., Horowicz, E., Dixon, K., Ridley, J., Robinson, C., Simmons, A., Craske, J., Sinha, S., Morton, L., Nafria, B., Forsner, M., Rullander, A.-C., Nilsson, S., Darcy, L., Karlsson, K., Hubbuck, C., Brenner, M., … Robichaud, F. (2023). Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus. European Journal of Pediatrics, 182(10), 4707–4721. https://doi.org/10.1007/s00431-023-05131-9   

Brenner, M., Weir, A., McCann, M., Doyle, C., Hughes, M., Moen, A., Ingvar, M., Nauwelaerts, K., Turk, E., & McCabe, C. (2023). Development of the key performance indicators for digital health interventions: A scoping review. DIGITAL HEALTH, 9, 20552076231152160. https://doi.org/10.1177/20552076231152160  

Carey, E., Foran, S., Burke, G., & Ryan, J. (2023). The Irish perspective on placement opportunities accessed by students on undergraduate Nursing (Intellectual Disability) programmes: A quantitative descriptive study. British Journal of Learning Disabilities, 51(1), 38–52. https://doi.org/10.1111/bld.12466   

Cassidy, L., Quirke, M. B., Alexander, D., Greene, J., Hill, K., Connolly, M., & Brenner, M. (2023). Integrated care for children living with complex care needs: an evolutionary concept analysis. European Journal of Pediatrics, 182(4), 1517–1532. https://doi.org/10.1007/s00431-023-04851-2   

Cooke, E., Brenner, M., & Smith, V. (2023). The impact of COVID-19 on parents of autistic children with a particular focus on access to respite care. Advances in Autism, 9(3), 266–278. https://doi.org/10.1108/AIA-07-2022-0036   

Dowling, T., Kennedy, S., & Foran, S. (2023). Who Bears Responsibility for the Post-Acute Older Adult: Patient, Family or State? British Journal of Community Nursing, 28(8), 376–383. https://doi.org/10.12968/bjcn.2023.28.8.376   

Edwards, A. P., & Nash, A. J. (2023). Transformative care for people with disabilities: Empowering senior nursing students with competency based clinical education-A qualitative study of the impact. Nurse Education Today, 126, 105822. https://doi.org/10.1016/j.nedt.2023.105822    

Hekel, B. E., Pullis, B. C., Edwards, A. P., & Alexander, J. (2023). Teaching Social Determinants of Health Through an Unfolding Case Study. Nurse Educator, 48(3), 137. https://doi.org/10.1097/NNE.0000000000001333   

Iriarte, E., Cianelli, R., De Santis, J. P., Alamian, A., Castro, J. G., Matsuda, Y., & Araya, A.-X. (2023). Factors Related to Multidimensional Frailty Among Hispanic People Living With HIV Aged 50 Years and Above: A Cross-sectional Study. Journal of the Association of Nurses in AIDS Care, 34(3), 259. https://doi.org/10.1097/JNC.0000000000000398   

Matsuda, Y., Thalasinos, R. D., Parra, A., Laporte, R. R., Mejia-Botero, M. A., Adera, A. L., Siles, M., Lazaro, G., Venkata, R. N., & Santis, J. P. D. (2023). Parent-child communication about substance use, puberty, sex, and social media use among Hispanic parents and pre-adolescent children. PLOS ONE, 18(11), e0295303. https://doi.org/10.1371/journal.pone.0295303   

Matsuda, Y., Prather, S. L., Reaves, R. P., McEwing, E. M., Iriarte, E., & Everett-Thomas, R. (2023). Understanding the student’s experience of community health nursing simulations. International Journal of Nursing Education Scholarship, 20(1). https://doi.org/10.1515/ijnes-2022-0022   

Moore, K., Reidy, M., & Foran, S. (2023). Understanding the menopausal experiences of women with intellectual disabilities: A scoping review. Journal of Intellectual Disabilities, 17446295231182246. https://doi.org/10.1177/17446295231182246   

Murnane, S., Purcell, G., & Reidy, M. (2023). Death, dying and caring: exploring the student nurse experience of palliative and end-of-life education. British Journal of Nursing, 32(11), 526–531. https://doi.org/10.12968/bjon.2023.32.11.526   

Sarik, D. A., & Matsuda, Y. (2023). Baby Steps: Improving the Transition from Hospital to Home for Neonatal Patients and Caregivers Through a Nurse-Led Telehealth Program. In C. L. Betz (Ed.), Worldwide Successful Pediatric Nurse-Led Models of Care (pp. 25–50). Springer International Publishing. https://doi.org/10.1007/978-3-031-22152-1_3   

Quirke, M. B., Cassidy, L., Alexander, D., Walsh, C., Hill, K., Masterson, K., Flynn, N., & Brenner, M. (2023). The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician’s decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1. Frontiers in Pediatrics, 11. https://doi.org/10.3389/fped.2023.1252440   

West, P., Jensen, E. J., Douglas, S. N., Wyatt, G., Robbins, L., & Given, C. (2023). Perceptions of families with adolescents utilizing augmentative and alternative communication technology: A qualitative approach. Journal of Pediatric Nursing, 71, e46–e56. https://doi.org/10.1016/j.pedn.2023.04.014   

Ailey, S. H., Heller, T., & Brown, H. E. (2022). Mental Health of Older Adults With Intellectual Disability. Journal of Psychosocial Nursing and Mental Health Services, 60(7), 10–14. https://doi.org/10.3928/02793695-20220610-01   

Desroches, M. L., Fisher, K., Ailey, S., Stych, J., McMillan, S., Horan, P., Marsden, D., Trip, H., & Wilson, N. (2022). Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives. Journal of Policy and Practice in Intellectual Disabilities, 19(1), 48–63. https://doi.org/10.1111/jppi.12411   

Dowling, T., Kennedy, S., & Foran, S. (2022). 10 ASSISTED DECISION-MAKING, THE OLDER ADULT, AND LOCUS OF CONTROL. Age and Ageing, 51(Supplement_3), afac218-006. https://doi.org/10.1093/ageing/afac218.006   

Felter, J., Baker, A., Lieberman, L., Fein, J., Reidy, M. C., & Showstark, M. (2022). Adverse Childhood Experiences and Trauma-Informed Care. The Journal of Physician Assistant Education, 33(3), 264. https://doi.org/10.1097/JPA.0000000000000449  

Fisher, K., Desroches, M. L., Marsden, D., Rees, S., Northway, R., Horan, P., Stych, J., Ailey, S. H., Trip, H., & Wilson, N. (2022). International Nursing Actions to Reduce Health Inequities Faced by People with Intellectual and Developmental Disability.OJIN: The Online Journal of Issues in Nursing. https://doi.org/10.3912/OJIN.Vol27No03Man07  

Horan, P., Desroches, M., Marsden, D., Fisher, K., Stych, J., Ailey, S., McMillan, S., Tripp, H., & Wilson, N. (2022). P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study. J Epidemiol Community Health, 76(Suppl 1), A56–A56. https://doi.org/10.1136/jech-2022-SSMabstracts.116  

Moore, C. M., Pan, C. X., Roseman, K., Stephens, M. M., Bien-Aime, C., Morgan, A. C., Ross, W., Castillo, M. C., Palathra, B. C., Jones, C. A., Ailey, S., Tuffrey-Wijne, I., Smeltzer, S. C., & Tobias, J. (2022). Top Ten Tips Palliative Care Clinicians Should Know About Navigating the Needs of Adults with Intellectual Disabilities. Journal of Palliative Medicine, 25(12), 1857–1864. https://doi.org/10.1089/jpm.2022.0384